Thalassaemia Patient Event 2025

The Haemoglobinopathy Coordinating Centre for the North of England is excited to invite you to YOUR day – an opportunity to connect, learn, and share with your incredible community!

Registration is essential. Secure your free spot at Elland Road, Leeds, by clicking "Select Tickets" now! Full event details and a provisional agenda will be provided upon registration.

What to Expect:

• Gene therapy: Update and empowering sessions on pathway, pastoral support, and fertility.
• Patient stories: Connect with your community through discussions, inspiring stories, and peer support.
• Workshops: Participate in interactive sessions designed to enhance your knowledge.
• Youth forum: Open space for stimulating discussion and empowerment and confidence building.

What's Included (All FREE!):

• Delicious refreshments throughout the day.
• A two-course lunchtime meal.
• The triumphant return of our legendary raffle!

Important Information – Please Read

• Advance registration is essential to attend, due to capacity and catering. Unregistered attendees cannot be accommodated, and Leeds United security may deny entry. Please bring your ticket (as a PDF or printout) to ensure smooth entry.
• If bringing family/guests, please select the correct number of tickets.
• If your plans change, please inform us as soon as possible to allow others to attend.
• This event is for individuals with full thalassaemia (major/intermedia), not trait, to ensure tailored content.
• Once you register, you'll receive an email containing your ticket with a QR code, a PDF version that you can save to your phone, and a link to the provisional agenda. We will send the final agenda and a patient handout via email closer to the event, so please keep an eye on your inbox!

Don't miss this chance to learn, connect, and have a brilliant time! We can't wait to see you.