Children Can't Wait: From Awareness to Action

Join us for the next installment of our groundbreaking series where philanthropists, innovators, industry leaders, and advocates come together to confront the gap between scientific advances and market reality for children with rare diseases and create new pathways to deliver the treatments they deserve.

Evening includes cocktails, dinner & networking.

Event Highlights

Keynote Speaker
Gunnar Esiason
Vice President of Patient Strategy & Innovation, Raven Healthcare Incubator

A cystic fibrosis patient leader and advocate since his 1993 diagnosis, channeling a passion for early-stage drug development, patient empowerment, and health policy into work that has helped raise more than $160 million for the fight against cystic fibrosis.

Featured Speaker
Allyson Berent
DVM, DACVIM; CSO, Foundation for Angelman Syndrome Therapeutics; CDO, AS2Bio

A veterinary specialist who became a rare disease drug developer and advocate after her daughter's Angelman syndrome diagnosis, working to advance cell and gene therapies from the lab toward the patients and families who need them.