CGD Community Weekend 2026

The CGD Society is delighted to invite registrations for our CGD Community Weekend, taking place on Saturday 13 March and the morning of Sunday 14th March 2027.

This special weekend is an opportunity for individuals and families affected by Chronic Granulomatous Disorder (CGD) to come together, connect with others in the community, hear from expert speakers, meet the CGD Society team, and enjoy a range of activities for both adults and children.

Accommodation on the night of 13 March, together with meals, refreshments and all planned activities throughout the weekend, will be provided by the CGD Society at no cost to attendees. Whether you are newly diagnosed, have been part of the CGD community for many years, or are supporting a loved one affected by CGD, we hope this weekend will provide a welcoming space to learn, share experiences and build lasting connections.

As part of our planning, members of the CGD Society team have visited the venue and worked alongside our Clinical Nurse Specialist, Helen, to ensure it is appropriate for individuals affected by CGD. We understand how important it is for attendees to feel comfortable and reassured, and every effort has been made to create a safe, welcoming and enjoyable environment for everyone.

Who can attend?

The CGD Community Weekend is intended for people who are directly affected by CGD and their immediate families. This includes:

• Adults living with CGD, together with their partner and dependent children (where applicable).
• Female X-linked carriers of CGD, together with their partner and dependent children (where applicable).
• Families with a child affected by CGD, including parents, siblings and dependent children.
• Individuals who have received a bone marrow transplant or gene therapy for CGD, together with their immediate family.

We welcome registrations from members of the CGD community both within the UK and internationally.

Unfortunately, due to the capacity of the venue and available accommodation, we are unable to accommodate extended family members.

What's included?

• Accommodation on Saturday 14 March 2027
• Meals and refreshments throughout the weekend
• Expert presentations and Q&A sessions
• Children's activities
• Opportunities to meet other members of the CGD community
• Time with the CGD Society team

Travel

Attendees are responsible for arranging and funding their own travel to and from the venue.

Limited travel support may be available in exceptional circumstances. If travel costs would prevent you from attending, please contact the CGD Society before registering to discuss your circumstances in confidence.

If you are travelling a longer distance and wish to arrive on Friday 30 October, we will be happy to provide information about nearby accommodation. Please note that accommodation for the night before the event is not funded by the CGD Society.