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  • Gary Woodward Dyskeratosis Congenita Trust and DC Action Q&A with Professor Dokal
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Gary Woodward Dyskeratosis Congenita Trust and DC Action Q&A with Professor Dokal

Wed 24 Jan 2024 7:00 PM - 8:00 PM GMT Online, Zoom

Gary Woodward Dyskeratosis Congenita Trust and DC Action Q&A with Professor Dokal

Wed 24 Jan 2024 7:00 PM - 8:00 PM GMT Online, Zoom

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Please join the Gary Woodward Dyskeratosis Congenita Trust and DC Action, as we come together to provide the Dyskeratosis Congenita/telomere biology disorders community a Q&A session with Professor Dokal.

This one hour session will provide a brief overview of Dyskeratosis Congenita, drawing upon UK and international statistics regarding this rare condition. Information will be shared regarding:

  • UK specialist centers for treatment and diagnosis
  • What patients should expect in terms of management and care
  • Treatments, new/emerging treatments, and clinical trials.

Patients and those caring for/supporting patients, will also be given the opportunity to give feedback on what they would like to see in any future support sessions that the Gary Woodward Dyskeratosis Congenita Trust and DC Action may run.