Support Meeting: "Top Tips"
Thu 18 Apr 2024 7:00 PM - 8:00 PM BST
Online, Zoom
Description
Join The Gary Woodward Dyskeratosis Congenita Trust and DC Action for a community support group meeting for UK community members. This free to attend session is specifically for patients with Dyskeratosis congenita and those who care for loved ones with the condition.
The theme of this meeting is "Top Tips" - an opportunity to share with, and learn from others in the community. Possible discussion topics will include:
- Top tips for a hospital bag
- Top tips for getting the most out of a consult with your clinician
- Top tips for someone who has just received a diagnosis
You can submit questions/comments in advance as part of registering for this event, or you can contribute directly on the evening.