Dystonia Matters Live 2025

Join Dystonia UK in 2025 in the country's capital for the biggest event for people living with dystonia in the UK.

Dystonia Matters Live is a free* event bringing Dystonia UK's popular Dystonia Matters magazine to life with interactive and innovative sessions on 'The Main Stage' and 'The Acoustic Stage.' Featuring guest speakers, from medical experts to community champions, we'll be talking about treatments, mental health, and living well with dystonia.

Designed for everyone - adults, professionals, kids, carers & families - the event offers plenty of time to connect and explore multimedia rooms, exhibition stands, and more! Taking place over two days, we've created a relaxed format with plenty of breaks allowing you to pop in and out for the sessions most relevant to you.

We've planned some extraordinary days for you, filled with understanding, connections and celebrations. The event promises to be a source of info and support for everyone living with dystonia.

If you would like to know more, check out the information below. Got any other questions? Visit our website for further details.

For the first time ever we are so excited to include The Dystonia UK Awards ceremony as part of the Dystonia Matters Live 2025 weekend too. The awards are a celebration of the community and a chance to shine a spotlight on remarkable individuals living with dystonia! They are at the very heart of our event with spectacular food and incredible entertainment - it promises to be a night you won't want to miss!

To find out more about our awards, visit our website.

Dystonia Matters Live takes place across 2 days - Friday 27th & Saturday 28th June. Timings to be confirmed.

The Dystonia UK Awards 2025 take place on Friday evening, 7-10:30pm.

Hosted at the Radisson RED, with incredible views of lively Heathrow Airport and beyond. We hope you're looking forward to your stay!

Tickets to Dystonia Matters Live 2025 are free*.

Tickets to The Dystonia UK Awards 2025 are £45, £18 for children (16 and under).
If you are a Dystonia UK member, please enter your member discount code at the checkout to apply a 10% discount on tickets to The Dystonia UK Awards 2025. 

Tickets must be booked in advance! You can book your tickets for The Dystonia UK Awards 2025 and Dystonia Matters Live 2025 as a bundle or separately at the checkout.

*A refundable deposit of £25pp (excluding children 16 and under) is required when booking to secure your place for Dystonia Matters Live. All deposits will be refunded to individuals within 1 month of attendance of the event.

We know sometimes plans change, refundable deposits help us to accurately plan ahead confirming things like catering with our venue and ensure we have the right resources in place to help everyone who can attend have a great day!

We are committed to making this event as inclusive as possible. Our venue is open to all with accessible facilities and accommodation, and we'll be offering a number of accessibility services across the two days. There will be regularly scheduled breaks and quiet rooms available throughout the event so that you can feel comfortable during the day and manage your dystonia.

Please see our accessibility guide for more information on how we are making our event accessible, including details on our venue and the features that will be available.

When you book your place we'll ask you about your access needs to ensure we have everything that we can to support you across the two days.

We have a fantastic range of Dystonia UK branded merchandise that you can buy with your ticket and proudly use to help raise awareness of dystonia. Any items ordered with your tickets will be ready for you to collect at registration. If you would prefer to receive them in advance please get in touch.

Dystonia UK members - please enter your member discount code at the checkout to apply a 10% discount on merchandise.

Dystonia UK exists to give hope and support to everyone living with dystonia, and to create UK and worldwide awareness. We are children and adults with dystonia, carers and clinicians, fundraisers and families, medical professionals and our amazing members and supporters, all working side by side.

Disclaimer: The sessions brought to you at this event are designed to answer general questions about dystonia. Any specific questions about your health situation should be directed to your primary medical team.