Dystonia Matters Digital 2020

Dystonia UK Presents: Dystonia Matters Digital 2020 

About this Event

This year our annual conference will be entirely digital and we have four fantastic 3 hour sessions lined up. Each with a pre-recorded presentation, a live Q&A where you will have the opportunity to ask your questions to a panel made up of patients and specialists, and a networking opportunity.

Along with the professionals who are giving their time and expertise, your voice will be at the centre of the conversation. We are incredibly excited to bring you content that is both interactive and informative. The conference is a mix of practical advice, shared life experiences and an opportunity to look to the future for the dystonia community.

The digital format gives a greater flexibility allowing you to purchase tickets for individual sessions or a full conference ticket, that allows access to all four sessions.

Campaigning for Change session

• Georgina Carr from Neurological Alliance England;
• Tanith Muller from The Neurological Alliance of Scotland;
• David Galloway from Northern Ireland Neurological Charities Alliance; and
• Rebecca Brown from The Welsh Neurological Alliance.

Mental Health Matters session

• Professor Emeritus Marjan Jahanshahi;
• Mandy, patient speaker; and
• Nick, patient speaker.

The Future of Neurology session

• Dr Peter Moore and Dr Richard Ellis from The Walton Centre;
• Dr Eoin Mulroy and Professor Tom Warner from the UCL Institute of Neurology;
• Dr Jean-Pierre Lin from Evelina London Children's Hospital; and
• Dr Kathryn Peall from Cardiff University.

Know Your Rights session

• Michael Paul from Disability Rights UK;
• Gemma Stevenson, journalist and Dystonia UK Ambassador; and
• Tully Kearney, British Paralympic swimmer and Dystonia UK Patron.

Friday 25th & Saturday 26th of September 2020

Morning sessions: 

• 9:30am: pre-recorded presentation made available to attendees
• 11am: live Q&A starts on Zoom
• 12pm: networking starts on Zoom
• 1pm: session closes

Afternoon sessions:

• 1:30pm: pre-recorded presentation made available to attendees
• 3pm: live Q&A starts on Zoom
• 4pm: networking starts on Zoom
• 5pm: session closes

Per session:

• £10  

Full conference (includes all four sessions):

• £40  

Dystonia UK members - please enter your member discount code at the checkout to apply a 20% discount on tickets and merchandise.

Tickets are sold on a per person basis. We are operating an honour system and we ask that if more than 1 member per household will be attending that you purchase individual tickets (even if you are sharing a screen).

Each session has a limited capacity so please do ensure you book early to avoid disappointment. The early bird full conference pass ticket holders will also receive a complimentary cotton Dystonia UK t-shirt.  To take advantage of the offer please select the early bird special ticket. (Available until all 50 tickets are sold.)

We can’t wait to see you there!

Please note the draft programme, timings and content are subject to change.

We have a fantastic range of Dystonia UK branded merchandise that you can buy with your ticket and proudly raise awareness throughout awareness month and at conference.