This year, Dystonia UK are excited to host our annual conference 'Dystonia Matters Live' from Edinburgh. We look forward to welcoming you in person or from the comfort of your own home for our very first hybrid event! However you join, the day will have all the things you've to come to expect: professional speakers, Q&A sessions, exhibition stands, breakout rooms, networking, and lots more...we can't wait to see you there!

Date: Saturday 18^th June 2022
Conference start: 9:45am BST
Conference end: 5:00pm BST

We will be using our live streaming platform (Whova) to bring this event live to your home! To join us virtually you will need a computer/laptop/smartphone, internet connection and a pre-purchased ticket.

We'll send you log in details and a handy guide as part of your 'Welcome pack' nearer to the event.

Dystonia Matters Live is a mix of practical advice, shared life experiences and an opportunity to bring the dystonia community together.

The theme for our 2022 event is The Future with a draft programme* as follows:

The sessions will be informative and interactive with opportunities for questions. There will be regular breaks scheduled throughout the day.

*Full detailed programme including speakers and timings to be announced soon.

Tickets must be bought in advance. Entry includes:

• a digital welcome pack
• a printed programme
• early access to conference platform
• live streamed sessions
• a goody bag
• networking opportunities
• access to exhibition stands

Children (up to 18 years old) can attend free.

Dystonia UK members - please enter your member discount code at the checkout to apply a 10% discount on tickets and merchandise.

Transparent pricing
We love bringing you our events for free, and wherever we can we do. This year we have been supported by sponsors and trusts which has allowed us to heavily subsidise tickets. This means the cost for you has not increased since our last in person conference. This is not a profit making event. Any money raised through tickets is used for costs relating to the event.

If you cannot attend in person or prefer not to, we're delighted to welcome you virtually too using our live streaming platform (Whova). The event will have:

• transcription enabled - this means that captions of what is being said can be displayed on screen during the meeting
• chat features which allow you to send a typed message to an individual or everyone
• a team to support you accessing the content live on the day

We have regularly scheduled breaks so however you choose to join you can feel comfortable throughout the day.

We are committed to making this event as inclusive as possible. If you have any additional requirements please get in touch and we will do our best to accommodate.

We have a fantastic range of Dystonia UK branded merchandise that you can buy with your ticket and proudly use to help raise awareness of dystonia.

Dystonia UK members - please enter your member discount code at the checkout to apply a 10% discount on tickets and merchandise.

Dystonia UK exists to give hope and support to everyone living with dystonia, and to create UK and worldwide awareness. We are children and adults with dystonia, carers and clinicians, fundraisers and families, medical professionals and our amazing members and supporters, all working side by side.

Disclaimer: The sessions brought to you at 'Dystonia Matters Live' are designed to answer general questions about dystonia. Any specific questions about your health situation should be directed to your primary medical team.