Sickle Cell Patient Event 2026

The Haemoglobinopathy Coordinating Centre for Sickle Cell in the North West of England is excited to invite you to YOUR day – an opportunity to connect, learn, and share with your incredible community!

Registration is essential. Secure your free spot at Alder Hey Children's Hospital, Liverpool, by clicking "Select Tickets" now! Full event details and a provisional agenda will be provided upon registration.

What to Expect:

• Gene therapy: Update and empowering sessions on pathway, pastoral support, and fertility.
• Patient stories: Connect with your community through discussions, inspiring stories, and peer support.
• Workshops: Participate in interactive sessions designed to enhance your knowledge.
• Forum: Open space for stimulating discussion and empowerment and confidence building.
• Charity & Support Stalls: Meet with organisations providing specialised advice and resources for the community.

What's Included (All FREE!):

• Delicious refreshments throughout the day.
• A fantastic lunchtime meal.
• The triumphant return of our legendary raffle!
• Children’s Room (ages 3–12*) with supervised activities and entertainment. Children must be fully toilet trained. 

*Age guidance only — activities are aimed at younger children. Older kids may use the space but might not be as interested.

Important Information – Please Read

• Advance registration is essential to attend, due to capacity and catering. Unregistered attendees cannot be accommodated, and security at the venue may deny entry. Please bring your ticket (as a PDF or printout) to ensure smooth entry.
• If bringing family/guests, please select the correct number of tickets (include yourself too!). Limited to 4 tickets per group to ensure fair access. If you need extra, please just let us know and we’ll see what’s possible.
• If your plans change, please inform us as soon as possible to allow others to attend.
• This event is for individuals with a full sickle cell condition, not trait, to ensure tailored content.
• Once you register, you'll receive an email containing your ticket with a QR code, a PDF version that you can save to your phone, and a link to the provisional agenda. We will send the final agenda and a patient handout via email closer to the event, so please keep an eye on your inbox!

Don't miss this chance to learn, connect, and have a brilliant time! We can't wait to see you.