RDR UK Annual Conference 2026

We are back for Year Three with the theme: The Power of Collaboration!

This year’s conference theme, The Power of Collaboration, highlights how working together drives progress in rare disease research.

We’ll showcase key achievements from across the platform and create space for focused, honest discussions around the challenges ahead—looking at how strong partnerships and shared expertise can turn ideas into real, impactful solutions.

We will explore topics including today’s rare disease research landscape in the UK, regulatory frameworks and pathways, emerging technologies, innovation and opportunities for rare disease research and showcase public and patient partnership in research, with speakers confirmed from the Office for Life Sciences, LifeArc, Genetic Alliance UK and the RDR UK Nodes and Hub.

We will also celebrate emerging talent with the announcement of the winners of this year’s two prestigious awards: the Early Career Researcher Award in PPIE and the Early Career Rare Disease Researcher Award. Hear directly from these researchers about their projects and the difference their work is making in the rare disease community.

Join us to connect, learn, and explore how collaboration is driving progress in rare disease research!

This is a free event. Kindly register your interest to secure your place!