Finding the missing 95%: updates on the Lynch Syndrome project

Lynch syndrome is an inherited condition that causes people to have a higher lifetime risk of bowel and endometrial cancers.

Alongside North Thames and South East Genomic Medicine Service Alliances, Central and South Genomics is working on the Lynch Syndrome project to improve the identification and management of Lynch Syndrome, bridging the gap in testing and diagnosis of Lynch Syndrome and supporting the early detection of cancer and access to personalised care. 

The aim of the project is to test every patient who develops bowel or endometrial cancer for Lynch syndrome; and then to embed new pathways for onward testing, surveillance and referrals for positive patients and their families. The project aims to improve early detection of cancers as well as personalised medical care. The agenda can be viewed by clicking here.

Join us on March 12th 2025 to hear updates about this project and learn about developments in diagnosis and treatment. Please note, this event contains regionally-specific information, and as such is only applicable to healthcare workers within the Central and South Genomics region: West Midlands, Oxfordshire and the Thames Valley, and Wessex.