The Journey to Diagnosis and Treatment of EDS, a Patients Perspective

Expert: Michael Dare | Consultant Physiotherapist and PhD Candidate | Professional Interests: Rheumatology, Ehlers Danlos Syndrome, MSK Ultrasound

Description: In this session we will discuss my research which has covered evidence based practice in Hypermobility spectrum disorder and EDS. We will discuss clinical symptoms, screening, diagnostic tools and evidence based practice.

I am also conducting a qualitative study into the lived experiences of patients with HSD/EDS in getting a diagnosis and treatment. Understanding a patients journey and the potential failures of the healthcare system to identify these conditions will allow health care professionals to improve on our screening and care for these patients.

Current evidence suggests 6-7 year delay to diagnosis in HSD/hEDS leaving patients frustrated, in pain, worsening mental health and bumbling around in circles seeing multiple specialists to try and get answers for a constellation of symptoms which could have been spotted and diagnosed sooner.

Come and joint me to discuss and learn about HSD and EDS to improve your practice and the care we can provide for these patients.

Join Physio Matters Advanced Practice (PMAP) for a 90-minute live webinar designed for clinicians who want practical, thought-provoking learning they can apply in real clinical practice. Each session runs from 7:00pm to 8:30pm and features an expert speaker sharing insights, clinical reasoning, and key takeaways on an advanced practice topic.

The main teaching will run for approximately 60–75 minutes, followed by dedicated live Q&A time, giving you the opportunity to ask questions, explore clinical uncertainties, and learn directly from the speaker.

Already a PMAP member? You can access this webinar as part of your membership. Head to the PMAP online library, on the homepage you will find the code to access your ticket for free. If you can't attend live the recording will be added to your library automatically within 4 hours. 

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