1st ELSI Conference

Event Details:
Date: Wednesday 26th March 2025.
Time: 10:00 to 16:00. (Registration 9:00 - 10:00 am)
Location: Foster Room, Hyatt Regency, 55 Booth Street West, Manchester, M15 6PQ, UK.

This event is an exciting opportunity to bring together researchers, healthcare professionals, and patient support groups to share experiences, cases, and insights on the Ethical, Legal, and Social Issues (ELSI) surrounding rare conditions.

Plenary session: " Paediatric rare condition clinical trials and what matters to children, young people and families".
Simon Jones - University of Manchester & Gracie Mellalieu

Panel discussion: “Patients' and families' priorities about clinical trials and treatments”.

As part of a breakout discussion later in the day, we will explore three topics, each linked to one of the three projects within the ELSI node.

To ensure productive and engaging conversations, we’d like to group participants based on their topic of interest. If you could kindly select a topic using the link below, it would be a great help in organizing the session.
https://forms.office.com/Pages/ResponsePage.aspx?id=B8tSwU5hu0qBivA1z6kad7belW39vfRHkuNRGt33SA5UNDdSUkIzQTQ4VkpZNzhTMlVTQ0UzOTFGQi4u

The deadline for registration is 10th March 2025 (17:00, GMT).

Please note that we are unable to cover costs for travel, accommodation and subsistence to general delegates, i.e. attendees who are not presenting as a plenary speaker or panel member.