The BPA are pleased to announce our next patient event will take place on Saturday 29 March 2025 at the National Museum of Wales, Cardiff.

All are welcome; patients, their families/friends, and medical professionals alike. The programme will include doctor and patient talks, question and answer sessions, updates on research and a final social session providing plenty of opportunities to connect and share with other patients.

Full programme TBC – for now please save the date!

***Please note: 

We are introducing a small charge of £5 for attending this patient event, to reduce the costs incurred by last minute cancellations. However, we do not want anyone to miss out on any BPA event because of a lack of funds, so if the fee is prohibitive for you please do get in touch at helpline@porphyria.org.uk to discuss further. 

We can provide a refund on any cancellations made by 15 March 2025. After this date we will not be able to provide a refund. Thank you for your understanding.***