Join us for our TOFS Seminar 2025, in Bristol

Why attend

Join us in Bristol to hear from some leading experts and specialists from a variety of healthcare professions, who work with OA/TOF patients. It is also a great chance to chat with other members; meet the TOFS volunteers and staff team and meet other charities/associations representing other medical anomalies. All adults and children (over age 13 years) born with OA/TOF, parents, relatives, and healthcare professional’s welcome!

As this is an afternoon event, there will be tea and coffee for refreshments during the breaks, no food will be provided. The conference sessions are not appropriate for young children under the age of 13, and there will not be a creche. However, we understand some members may need to bring their young children, please be aware they are your responsibility at all times, as they will not be able to join the sessions and must have an adult looking after them.

Registration on the day opens at 12:15 and the presentations will begin at 12:45.

We look forward to seeing you there!

Speakers include

Clare Skerritt – Paediatric Consultant, Bristol Royal Hospital for Children

Helen Marks – Speech and Language Therapist, Bristol Royal Hospital for Children

Carole Melia – Transition pathway lead for Somerset Foundation Trust and OA/TOF parent

Charles Shaw-Smith – Consultant in Clinical Genetics, Royal Devon and Heavitree Hospital

General Questions

How much are tickets?

Tickets are free to TOFS’ Members, Associates and Health Professionals. If you wish to join TOFS, please sign up at - https://tofs.org.uk/join-tofs/ Though there is no charge to members, the event has a cost to TOFS, so please let the office know if you book and then can’t attend.

Is there a cancellation deadline?

Yes. If you can no longer attend, please let us know via info@tofs.org.uk no later than 3 days before the seminar.

Can I watch the seminar online?

This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event, listening to the speakers; interacting with the Q&A and discussion sessions; meeting other organisation representatives and TOFS volunteers; and chatting with other members of TOFS who will be attending.

Some of the presentations may be recorded and posted online at a later date.

Is this a TOFS party?

No, this is an information seminar.

Can I bring my child/children?

The conference sessions are not appropriate for young children under the age of 13, and there will not be a creche. However, we understand some members will need to bring their young children, so we ask that you plan to have someone else attend with you, who is able to look after them whilst you are in the sessions.

Will there be lunch?

No, but there will be tea and coffee available during the refreshment breaks. The venue has said that you are welcome to bring along some TOF-friendly small snacks of your own to eat, just not any larger meals/lunches.

Will I get a chance to speak to other families / people affected by OA/TOF?

Yes, we will have an extended refreshment break to allow you a chance to chat with other members, talk to representatives of other organisations, and TOFS volunteers.

Is there wheelchair access?

Each room at St Michael's Centre is accessible through using lifts and ramps. Doors and corridors are wide enough for standard wheelchairs. If you have any disability that may affect your access or participation in the event, please let us know when ordering your tickets.

If you have any further questions, please send them to us at info@tofs.org.uk