THE 'CECI' CUP

CHARITY GOLF DAY TO RAISE FUNDS AND AWARENESS TO FAST UK IN THIER MISSION TO CURE ANGELMAN SYNDROME at MARRIOTT WORSLEY PARK GOLF CLUB on Friday 21st June 2024

An amazing fun filled golf day full of competitions, food and drink followed by a 4 course dinner, entertainment, live music, raffles, auction, DJ, 1am Bar and much more...

THE 'CECI' CUP PRICES...

4 Ball (including evening) + 4 Evening Guests (Table of 8) @ £900

4 Ball (including evening) @ £600

Evening Guests (Table of 8) @ £600

Individual Evening Tickets @ £75.00

Individual Golf (including evening) @ £150.00 

Hole Sponsor @ £150.00

Sponsorship Packages available (Contact me directly)

• Logo and company name used in on-the-day literature
• Opportunity to place branding at the tee of your chosen hole
• Option to provide giveaway items (e.g., branded pens, golf balls, etc.)

Want to become a HEADLINE SPONSOR? Please get in touch!!

Donate a prize...

We are also looking for some incredible prizes that we can use for our auction and raffle. If you are able to donate an item, voucher or money-can’t-buy experience that we can use, it would be greatly received. If you would like purchase tickets, become a sponsor or donate a prize, please email heatherannlee@hotmail.co.uk or call 07540143891.

We were truly blessed in 2018 with our beautiful daughter Cecilia Bonnie Brady 'Ceci'.

Ceci was diagnosed with Angelman Syndrome when she turned 2, which is a very rare neurogenetic disorder. 'AS' affects approximately 1 in 15,000 live births or 500,000 people worldwide.

Children and adults with 'AS' have balance issues, motor impairment, debilitating seizures, some never walk, and most do not speak and have severe learning difficulties.

We devastatingly lost our daughter shortly before her 4th birthday. She was the most special little girl you could ever meet, she was happiness personified! Ceci was such a determined little girl which gives us the inspiration to continue to raise funds and awareness of Angelman Syndrome to help find a cure for this debilitating disease in honour of Ceci.

Your donations will fuel the necessary research that will enable clinical trials in the UK and will get us closer to a safe, efficient and accessible treatment or even multiple treatments for Angelman Syndrome.

This key research – the Natural History Study – costs £250,000 per year.

£2,000 covers an innovative ultra-sensitive wearable device for one patient enabling valuable data collection

£10,000 allows one patient to participate in the Study and to line them up for future trials

£250,000 pays for 1 year of the Natural History Study in full